Learn about it. Talk about it.
Learn about epilepsy, what type you’ve got, and what sets your seizures off. Having a good understanding of not only epilepsy, but your type of epilepsy is the first step in taking control.
Learn about lifestyle changes that will help with seizure control, and decide what you are prepared to do with your lifestyle.
Take the time to talk to your specialist, write a list of questions that most concern you. If he or she doesn’t have the time to answer all your questions, then try other health professionals; epilepsy nurses, community organisations or your GP.
Talking to other people with epilepsy, especially peers, can also be very helpful and empowering. It’s amazing how much you can learn from other people’s experiences.
If there are any issues in your family in regards to your epilepsy, and if you feel confident enough, bring up what’s on your mind with your parents – things like managing on your own and making your own decisions. It can be hard for parents to let go especially when they have managed your epilepsy since you were young so be patient with your parents and tackle one issue at a time.
We have a private Facebook group for young people. Contact us on [email protected] if you are interested in joining and chatting to other young people with epilepsy.