The Functions of Disabled People’s Organisations (DPOs) in Low and Middle-income Countries: A Literature Review
Purpose: The aim of this study was to review peer-reviewed literature on the roles and functions of Disabled Peoples’ Organisations (DPOs) in low and middle-income countries, and their outputs and outcomes for people with disabilities.
Method: Online databases were searched without date or language limiters (Medline, CINAHL, Scopus, Embase and Cochrane), using a combination of two key word search strategies. Eleven studies were selected for inclusion in this review on the basis of predetermined inclusion and exclusion criteria. Included studies underwent quality assessment using the Critical Appraisal Skills Programme (CASP) and Downs and Black’s criteria for quality assessment. Data for thematic analysis was then grouped under the broad themes of: participation and factors that facilitate participation; development of partnerships and connections; and self-development and self-help.
Results: There was some evidence within the included studies to suggest that DPOs can produce significant, positive outcomes for persons with disability in terms of factors such as employment rates, access to microfinance and bank loans, accessibility of housing, acquisition of orthopaedic devices, involvement in civil society, development of friendships and networks, and participation in training programmes. Although the studies under review largely did not investigate the long-term impact of the reported DPO functions and outputs, some of the short-term outputs may be considered proximal indicators of outcomes such as increased empowerment and wellbeing.
Conclusion: The 11 studies in this review suggested that DPOs can be effective in achieving their stated aims of promoting wellbeing, participation and rights of people with disabilities in low and middle- income countries.
Anderson C (2010). Presenting and evaluating qualitative research. American Journal of Pharmaceutical Education; 74(8):141. http://dx.doi.org/10.1177/1468794110375796. http://dx.doi.org/10.1177/1468794110379331
Armstrong M (1993). Disability self-help organisations in the developing world: A case study from Malaysia. International Journal of Rehabilitation Research; 16(3):185-194. http://dx.doi.org/10.1097/00004356-199309000-00002. PMid:8244611
Australian Disability and Development Consortium - ADDC (2016). Disabled people's organisations. Available: http://www.addc.org.au/content/links/dpos [Accessed on 8 Apr 2016].
CBM (2012). Inclusion made easy: A quick programme guide to disability in development. CBM. Available at: http://www.cbm.org/article/downloads/78851/CBM_Inclusion_Made_Easy_-_complete_guide.pdf [Accessed on 23 May 2016]
CBM (2012). A human rights-based approach to disability in development. Available: http://www.cbm.org/A-human-rights-based-approach-to-disability-in-development-396302.php [Accessed on 8 Apr 2016].
Cobley DS (2013). Towards economic participation: Examining the impact of the convention on the rights of persons with disabilities in India. Disability and Society; 28(4): 441-455. http://dx.doi.org/10.1080/09687599.2012.717877
Coe S, Walping L (2010). Practical lessons from four projects on disability-inclusive development programming. Development in Practice; 20(7): 879-886. http://dx.doi.org/10.1080/09614524.2010.508109
Cornielje H (2009). The role and position of disabled people's organisations in community based rehabilitation: Balancing between dividing lines. Asia Pacific Disability Rehabilitation Journal; 20 (1): 3-14. http://www.dinf.ne.jp/doc/english/asia/resource/apdrj/vol20_1/guest-ed.html
Critical Appraisal Skills Programme - CASP (2013). Qualitative research checklist. Available: http://www.casp-uk.net/ - !casp-tools-checklists/c18f8 [Accessed 17 Feb 2016].
Deepak S, dos Santos LR, Griffo G, de Santana D, Kumar J, Bapu S (2013). Organisations of persons with disabilities and community-based rehabilitation. Asia Pacific Disability Rehabilitation Journal; 24(3): 5-20. http://dcidj.org/article/view/269. http://dx.doi.org/10.5463/dcid.v24i3.269
Dhungana BM, Kusakabe K (2010). The role of self-help groups in empowering disabled women: A case study in Kathmandu Valley, Nepal. Development in Practice; 20(7): 855-865. http://dx.doi.org/10.1080/09614524.2010.508244
Dor I, Savaya R (2007). Community rehabilitation for persons with psychiatric disabilities: Comparison of the effectiveness of segregated and integrated programmes in Israel. Psychiatric Rehabilitation Journal; 31(2): 139-148. http://dx.doi.org/10.2975/31.2.2007.139.148. PMid:18018958
Downs SH, Black N (1998). The feasibility of creating a checklist for the assessment of the methodological quality both of randomised and non-randomised studies of health care interventions. Journal of Epidemiology and Community Health; 52(6): 377-384. http://dx.doi.org/10.1136/jech.52.6.377. PMid:9764259 PMCid:PMC1756728
Enns H (n.d.). The role of organisations of disabled people: A disabled peoples' international discussion paper. Independent Living Institute. Available: http://www.independentliving.org/docs5/RoleofOrgDisPeople.html [Accessed 29 Sep 2015].
Griffiths M, Mannan H, MacLachlan M (2009). Empowerment, advocacy and national development policy: A case study of Disabled Peoples' Organisations in Bolivia. Disability and international development: Towards inclusive global health. Springer US.
Groce NK, Lang R, Trani J (2011). Disability and poverty: The need for a more nuanced understanding of implications for development policy and practice. Third World Quarterly;(8) 32: 1493-1513. http://dx.doi.org/10.1080/01436597.2011.604520
Governance and Social Development Resource Centre - GSDRC (2016). Support and participation in society. Available at: http://www.gsdrc.org/topic-guides/disability-inclusion/the-situation-of-people-with-disabilities/support-and-participation-in-society/ [Accessed on 17 Feb 2016].
Hawtin K (2014). The Rapid Assessment of Disability (RAD) survey in India: A process evaluation of the planning and initial implementation phases. The Nossal Insitute for Global Health; The University of Melbourne.
Hemingway L, Priestley M (2006). Natural hazards, human vulnerability and disabling societies: A disaster for disabled people? The Review of Disability Studies: An International Journal; 2(3).
Kleintjes S, Lund C, Swartz L (2013). Organising for self-advocacy in mental health: Experiences from seven African countries. African Journal of Psychiatry (South Africa); 16(3): 187-195. http://dx.doi.org/10.4314/ajpsy.v16i3.25
Kumaran KP (2011). Role of self-help groups in promoting inclusion and rights of persons with disabilities. Asia Pacific Disability Rehabilitation Journal; 22(2): 105-113. http://dx.doi.org/10.5463/dcid.v22i2.78
Kuyini AB, Alhassan A, Mahama FK (2011). The Ghana community-based rehabilitation programme for people with disabilities: What happened at the end of donor support? Journal of Social Work in Disability and Rehabilitation; 10(4): 247-267. http://dx.doi.org/10.1080/1536710X.2011.622981. PMid:22126142
Miles S, Fefoame GO, Mulligan D, Haque Z (2012). Education for diversity: The role of networking in resisting disabled people's marginalisation in Bangladesh. Compare: A Journal of Comparative and International Education; 42(2): 283-302.
Mitra S, Posarac A (2013). Disability and poverty in developing countries: A multidimensional study. World Development; 41: 1-18. http://dx.doi.org/10.1016/j.worlddev.2012.05.024
O'Brien BC, Harris IB, Beckman TJ, Reed DA, Cook DA (2014). Standards for reporting qualitative research: A synthesis of recommendations. Academic Medicine; 89(9): 1245-1251. http://dx.doi.org/10.1097/ACM.0000000000000388. PMid:24979285
Oxford Centre for Evidence-Based Medicine (2011). The Oxford 2011 levels of evidence. Available: http://www.cebm.net/wp-content/uploads/2014/06/CEBM-Levels-of-Evidence-2.1.pdf [Accessed on 20 June 2016]
People with Disabilities Australia -PWDA (2015). Disabled people's organisations (DPOs). Available: http://www.pwd.org.au/student-section/disabled-people-s-organisations-dpos.html [Accessed on 16 Sep 2015].
Polack S, Morgan Banks L (n.d.). The economic costs of exclusion and gains of inclusion of persons with disabilities: Evidence from low and middle- income countries. International Centre for Evidence in Disability.
Polu W, Mong A, Nelson C (2015). Social and economic inclusion of people with disabilities: Practical lessons from Bangladesh. Development in Practice; 25(8): 1182-1188. http://dx.doi.org/10.1080/09614524.2015.1078289
Prefered Reporting Items for Systematic Reviews and Meta-Analyses - PRISMA (2015). PRISMA checklist. Available: http://www.prisma-statement.org/PRISMAStatement/Checklist.aspx [Accessed on 20 June 2016].
Rioux M, Basser L, Jones M(2011). Critical perspectives on human rights and disability law. Boston: Martinus Nijhoff Publishers. http://dx.doi.org/10.1163/ej.9789004189508.i-552.18. http://dx.doi.org/10.1163/ej.9789004189508.i-552.67
Stewart R, Bhagwanjee A (1999). Promoting group empowerment and self-reliance through participatory research: A case study of people with physical disability. Disability and Rehabilitation; 21(7): 338-345. http://dx.doi.org/10.1080/096382899297585. PMid:10471164
The Social Progress Imperative (2016). Social progress index 2015. Available: http://www.socialprogressimperative.org/data/spi - performance/countries/com7/dim1,com1,com3,com4,dim2,com5,com6,com7,dim3 [Accessed on 5 Apr 2016].
The World Bank (2015). Updated income classifications. Available: http://data.worldbank.org/news/2015-country-classifications [Accessed 29 Sep 2015].
Tong A, Sainsbury P, Craig J (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care; 19(6): 349-357. http://dx.doi.org/10.1093/intqhc/mzm042. PMid:17872937
United Nations General Assembly (2006). Final report of the ad hoc committee on a comprehensive and integral international convention on the protection and promotion of the rights and dignity of persons with disabilities. Available: http://www.un.org/esa/socdev/enable/rights/ahcfinalrepe.htm [Accessed on 12 Apr 2016].
World Health Organisation (2010). CBR guidelines: Introductory booklet. In: MOTSCH., (ed.) Community based rehabilitation: CBR guidelines. Malta: WHO Press.
World Health Organisation (2011). World report on disability. Available: http://www.who.int/disabilities/world_report/2011/report.pdf [Accessed on 12 Apr 2016].
World Health Organisation (2015). Community- based rehabilitation. Available: http://www.who.int/disabilities/cbr/en/ [Accessed on 16 Sep 2015].
World Health Organisation (2016). Health statistics and information systems. Available: http://www.who.int/healthinfo/global_burden_disease/definition_regions/en/ [Accessed on 7 Apr 2016]
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