Year 10 girl Hadiya is doing a 5k charity dog walk this summer to raise money for the Elhers-Danlos Support UK charity.
The Ehlers-Danlos syndromes (EDS) are a group of thirteen individual genetic conditions, all of which affect the body’s connective tissue.
Connective tissue lies between other tissues and organs, keeping these separate whilst connecting them, holding everything in place and providing support, like the mortar between bricks. This means they can affect multiple systems of the body at once.
In EDS, a gene mutation causes a certain kind of connective tissue – the kind will depend on the type of ED S– to be fragile and stretchy. This stretchiness can sometimes be seen in the skin or individuals with the condition may also be able to extend their joints further than is usual – this is known as being hypermobile, bendy or double-jointed.
Hadiya, who has Ehlers-Danlos Syndrome (EDS) herself, spoke in Assembly on Monday about the topic and is supporting the charity who support people who have EDS, educate those who need to learn more, and raise funds to enable further research and development.
You can help Hadiya to raise money by donating using the JustGiving link below.