Several terms are used to refer to the same entity:
CCM (cerebral cavernous malformation)
This is a vascular abnormality in the central nervous system, which includes the brain and spine. The abnormal blood vessels are said to look like mulberries or raspberries, with multiple bubble-type spaces making up a lesion. In this disease process, the bubble spaces are made up of leaky blood vessel components, and the bubbles are filled with blood.
There are many factors that have to be taken into account when a child is diagnosed with cavernous angioma. Our team has a large experience together, coordinating diagnosis and care for patients and families.
The Angioma Alliance offers a remarkable wealth of information and family support.
Researchers with the Angioma Alliance have made great strides in the understanding of this disease. They aim to collect information on every patient and family affected by cavernous angiomas, with the hope of helping current and future patients. We fully support the efforts of the Angioma Alliance.
We have a collaborative relationship with Dr. Awad's clinical and research team at University of Chicago - made even easier since we worked together before I joined Texas Children's Hospital.